Policy and strategy recommendations

Last update 08 Nov 2016
69 paragraphs, 114 comments

Research and Innovation (R&I) Priorities on Active and Healthy Ageing (AHA)

Last update 29 Nov 2016
67 paragraphs, 45 comments

Roadmap for standardization on AHA facing 2020

Last update 19 Jan 2017
74 paragraphs, 0 comments

Roadmap for standardization on AHA facing 2020

Last update 29 Nov 2016
74 paragraphs, 45 comments

Research and Innovation (R&I) Priorities on Active and Healthy Ageing (AHA)

Methodological note

The identification of the most relevant priorities in the AHA field was carried out through desk-based research focused on the collection and analysis of over 60 scientific documents and relevant reports. This was followed by a consultation of approximately 90 members of the EIP on AHA Action Groups and the discussion of the findings and proposed R&I areas in a workshop with the 9 members of the Scientific Advisory Board. The final step of this process is to ask the EIP on AHA Action Group members to comment on the final R&I priorities that have been identified. These comments will be included in a final report which will support the development of the R&I roadmap for the EIP on AHA. This document will serve as basis for policy decision, hopefully influencing the definition of future research priorities.

Identified Research and Innovation (R&I) Priorities

P1. Increase technology awareness and improve user’s experience

• P1-RIA1 - Methods and technologies for improving health literacy
Maybe this sub-priority could find its place under the P3 priority as it is directly linked to patient/citizen empowerment. Furthermore, it's very similar to the P3-RIA3 sub-priotiry (Health literacy strategies)
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Francesco Giuliani
Francesco Giuliani
- 01 Sep 2016 18:20
Dear Francesco. Thank for your comment.we will take it into consideration. In fact they seem similar, but they are a bit different. Here it is related to the new methodologies and technologies that should be created to help in the health literacy. the P3-RIA3 is more focus on the ground, helping Healthcare and social care providers to equip and train patients. Amilcar (Proeipaha Team)
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Amilcar Baptista
Amilcar Baptista
- 07 Sep 2016 02:03
• P1-RIA2 - Methodologies for the co-creation of solutions
co-creation is an important process to established mutual understanding (related to awareness and acceptance) in both the development as well as the implementation and continuous refinement
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Nick Guldemond
Nick Guldemond
- 03 Sep 2016 14:22
Dear Nick, Thank you for your comment. Amilcar (PROEIPAHA Team)
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Amilcar Baptista
Amilcar Baptista
- 06 Sep 2016 10:35
Co-creation covers not only awareness and acceptance but also the possibility to truly integrate the end users (patients, elderly, family members, care personnel)- into the development work as such. Thus strengthening the probability that the new service really solves problems and provides measurable evidence of its usefulness and positive impact on care quality, efficiency, costs etc.
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Suzan Ikävalko
Suzan Ikävalko
- 12 Sep 2016 11:46
just noticed, that this is actually already said in the text box here :)
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Suzan Ikävalko
Suzan Ikävalko
- 12 Sep 2016 11:48
• P1-RIA3 - Lifestyle patterns and cultural differences of users
I would add "INTEGRATION OF lifestyle patterns..."
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Carina Dantas
Carina Dantas
- 19 Sep 2016 16:36
• P1-RIA4 - Population cohorts / user’s stratification for better personalised intervention
Cohort and population study/monitoring in this respect might be quite different from the traditional (medical oriented) cohort studies. I feel unsure about the use of cohort studies to create a better awareness or improve the user experience: maybe only to obtain general principals for particular populations or to create reference or normative data sets. I think it would make more sense to promote monitoring of individuals who're using technology and use their experience and preferences to improve functionality on an individual level.
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Nick Guldemond
Nick Guldemond
- 03 Sep 2016 14:38
I think that longitudinal studies are importante to monitoring individuals who are using technology
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Maria josé Lumini
Maria josé Lumini
- 06 Sep 2016 18:08
This priority addresses the need to raise awareness about the existing technologies and the impact they can have on improving the quality of life of older people and facilitating the provision of health and social care. It is a priority for the innovation and technology transfer agents to double their efforts in properly informing the users and educate them about the most recent technologies in the AHA sector. It includes the need for deeper knowledge on the user characteristics (e.g. age, gender) and specifications (e.g. social and cultural aspects) that can contribute for the development of better personalised interventions (e.g. changing from hospital-based models to home-centric approaches) and a more adequate design of new technologies and solutions for AHA. Also, it implies the active involvement of end-users in the definition and development phases of new solutions to ensure their appropriateness and suitability. Emphasis should be on improving the quality of care services, seeking to move from standardised health to personalised health under the motto “Less care is better care”.
I feel this whole set of priorities is starting off on the wrong foot. To me the most important thing is to work out what care pathways will best enable people to age well, in their own homes. Only when those have been agreed should we start to think about researching the best technology to support those care pathways. Can we therefore please have a P0 of "identify the best care pathways to support ageing well then research the best technology to support them"
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Charles Lowe
Charles Lowe
- 28 Jul 2016 12:50
Dear Charles. Thank you for your comment. In fact when we mentioned the "changing from hospital-based models to home-centric approaches" it refers to start to improve the models of health care and living conditions of the elderly in their own homes by giving them the conditions and all the necessary support to they can age well at their own homes avoiding as much as possible, hospitals and nursing homes. (Amilcar – PROEIPAHA Team)
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Amilcar Baptista
Amilcar Baptista
- 30 Aug 2016 11:54
"Please find here some general comments instead of a line by line: First, to ask for a deep reflection on the perversion of this dynamic of fixing wider and wider priorities in order to cover all the matters and all the interest. It’s known that opting-out is a very difficult exercise, but it’s the only one that has proved to be effective in establishing manageable action areas and prioritizing them. Secondly, to remain that subsidiarity is a basic criterion to apply when talking about European actions. In fact, important aims, as “P1 Increase technology awareness and improve user’s e
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Amilcar Baptista
Amilcar Baptista
- 14 Sep 2016 19:14
Although I believe this approach is overall adequate and adjusted, I think it's missing a link. Not only users and carers need to learn and be informed about techniologies (even though there are already care organisations that have some knowledge and can be helpful here) but technical stakeholders aso need more field knowledhe (not only academic knowledge) on ageing. So, I would add, after"...informing the users and educate them about the most recent technologies in the AHA sector." that researchers and developers also need to learn about real-life needs and expectations of elderly and carers.
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Carina Dantas
Carina Dantas
- 19 Sep 2016 16:33
We talk for a while about the triple or now quadruple helix of stakeholders but we still don't connect them all in both ways - learning and teaching. Only this exhange of knowledge can upgrade the technologies that may be developed and useful to the market.
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Carina Dantas
Carina Dantas
- 19 Sep 2016 16:35

P2. Cross-sectoral and multidisciplinary cooperation to improve the effectiveness of health and social care

• P2-RIA1 - Adoption of common terminologies
• P2-RIA2 - Knowledge management strategies
• P2-RIA3 - Skills and knowledge [within organisations] identification mechanisms
It is important the use of appropriate tools, ckecklist to monitoring the improve of skills and knowledge
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Maria josé Lumini
Maria josé Lumini
- 06 Sep 2016 18:16
Dear Maria. Thank you for your comment. in fact new methodologies will be created to be sure that knowledge and skills are strengthened and placed at the service of the ageing population. Amilcar (PROEIPAHA Team)
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Amilcar Baptista
Amilcar Baptista
- 07 Sep 2016 01:42
• P2-RIA4 - Growing awareness on AHA actors
• P2-RIA5 - Promote the dialogue amongst different actors
This priority refers to the need to bring together different actors in the AHA field and to get them “speaking” the same language and understanding each other’s roles in the development of the AHA sector. It is crucial that different sectors (e.g. closer cooperation between public and private sectors, with the first learning from the good practices of the latter) and areas of knowledge are able to work together on R&I initiatives, so that more comprehensive outcomes can be reached. SAB members highlighted that there is a need to accept that skills and expertise from the private sector are needed to create major innovations and a successful AHA sector.There is also a need to develop new working tools and methodologies for cooperation between sectors and actors from different cultures, languages, fields of knowledge, etc. Different and relevant stakeholders should be approached by eliminating communication barriers (e.g. common understanding of terminology) and by implementing knowledge management/sharing mechanisms, both of which are considered to be relevant aspects in this domain.
I completely agree with the stated need to work directly with the private sector and bring in their skills to the development and deployment work of new AHA services. Permanent stuctured Testbed activity can be one way of doing this. Other way is to work in private-public partnership projects, with clear intention and established need to create new service(S)for the use of the public sector partner in the first place and for other potential (also private) markets in the second place. This requires strong and devoted partnerships.
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Suzan Ikävalko
Suzan Ikävalko
- 12 Sep 2016 11:16
To achieve all these priorities what we need is to have more joint projects with the participation of all different actors. Although H2020 is very alligned with this, national funding programs (e.g. Portugal 2020) don't implement it - end users aren't eligible in research or development funding calls, for example - and only the experience of specific projects with all actors can bring more shared knowledge, awareness and more efectiveness of the proposed solutions.
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Carina Dantas
Carina Dantas
- 19 Sep 2016 16:41

P3. Patient and citizen empowerment and health literacy

• P3-RIA1 - Mobile solutions
It is important that solutions were developed with adequate, reliable and simple language
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Maria josé Lumini
Maria josé Lumini
- 06 Sep 2016 18:22
Dear Maria, you are right. Focus on overall improvement of communication between all AHA stakeholders is a major concern to take into account in this Project. Thank you for your comment. Amilcar (PROEIPAHA Team)
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Amilcar Baptista
Amilcar Baptista
- 07 Sep 2016 01:33
the use of mobile solutions is definitely one of the key topics but it is also linked with P9., data access, security and big data issues. Neither of these priorities can be discussed without the other.
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Wolfgang Gunzer
Wolfgang Gunzer
- 21 Sep 2016 18:33
• P3-RIA2 - Social participation methods
YOu have co-creation also in P 1. - is this the same focus here? In any case I would include the co-creation / service design aspect (i.e. User-Driven Innovation) much stronger in this paper. The usability, acceptance, value and outcomes of the new AHA services (that include technologies, digital solutions)are dependant of the having the real understanding of what works and what does not and why. This also makes it possible t evaluate the cost/effectiveness or cost/impact of the new deployed service - this is needed in a world of scarce resources where the payer wants to have "value for money"
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Suzan Ikävalko
Suzan Ikävalko
- 12 Sep 2016 11:38
• P3-RIA3 - Health literacy strategies
• P3-RIA4 - Translation of research results into a “common” language
This priority focuses on the need to equip and train patients with the appropriate knowledge and skills so that they are able to understand their health condition and to adopt available solutions to manage their health and quality of life. Healthcare and social care providers play a key role in this area, namely in demystifying and clarifying prevention, care and cure aspects to the patients and citizens in general. Furthermore, it is also necessary that they translate the technical jargon into a “common” language so that patients (and citizens) are able to clearly understand the specific aspects of their cases and how they can act to better manage their health and lifestyle.
This is in fact an area that needs to be developed. Cáritas Coimbra is developing many of these activities during its participation on H2020 projects, but we see that there's still a very low participation, awareness and even knowledge on many social care organisations - the economic crisis and the subsequent lack of resources made real damage on NGOs and they have difficulties in investing in these areas, but their iputs are indispensable in orderto have the results we want - solutions that work, that are adjusted to their target and that can have market impact.
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Carina Dantas
Carina Dantas
- 19 Sep 2016 16:46

P4. Chronicity and frailty

• P4-RIA1 - Risk factors, determinants and patterns of multi-morbidity
I'm really pleased to see this topic included as a priority. Key issues are pretty much picked in the 4 sub-categories. Items 2
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Mike Burrows
Mike Burrows
- 01 Sep 2016 17:18
Dear Mike, Thank you for your comment. Amilcar (PROEIPAHA Team)
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Amilcar Baptista
Amilcar Baptista
- 05 Sep 2016 17:13
• P4-RIA2 - Methods and tools to assess the impact of preventive interventions
One tool is to approach the assessment is to use the Value / Outcome based method presented in PROEIPAHA WP 7 (Innovative procurement): i.e. the Value / outcome based service design and procurement method. This is a structured approach that can be applied also in situation where no procurement takes place. Its steps include 1. setting clear objectives for the service, 2. setting clear metrics linked to the objectives, 3. Evaluation method that is implementable and valid. The objectives can include financial / economic ones and care quality / user value based objectives.
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Suzan Ikävalko
Suzan Ikävalko
- 12 Sep 2016 11:22
"I believe there is an important aspect missing. The quality of the environment where people spend most of their time is of the utmost importance. Not only are older people generally less robust and able to respond to low air quality and uncomfortable conditions, but they also tend to be less mobile and, thus, eventually spend a lot of time in confined spaces. What we think we know in terms of indoor air quality and comfort must be re-thought in light of these particular aspects relevant to this group of people. I believe this would be a great opportunity to address this issue. I would probabl
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Amilcar Baptista
Amilcar Baptista
- 14 Sep 2016 19:18
• P4-RIA3 - Development of biomarkers
• P4-RIA4 - Strategies for the promotion of healthy lifestyles
This priority relates to the evidence on the increase of chronic diseases and frailty amongst older people. In an ageing population such as Europe has today, tackling the challenges related to functional decline and loss of independence, namely through preventive measures that can contribute to the maintenance of the quality of life, are seen as a main area of concern and therefore a significant domain for further R&I initiatives. Besides, the need to move towards a proactive and preventive care (rather than continuing on a reactive care paradigm) has been highlighted and is nowadays being addressed by the healthcare systems of several European regions.
Prevention has been very highlighte but not yet implemented as needed - I'm glad to see it here again.
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Carina Dantas
Carina Dantas
- 19 Sep 2016 16:49

P5. Interoperability and standardisation

• P5-RIA1 - Definition and adoption of common standards
it's a very interessant topic but also very complicated, because standardisation should not be a constraint and a obstacle to developpement of personalized or customized solutions...it's important to find a balance Christophe MULLER, from Moselle Council (France)
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Christophe Muller
Christophe Muller
- 16 Sep 2016 10:01
• P5-RIA2 - Integration of care services
• P5-RIA3 - Knowledge about barriers for the interoperability of systems
• P5-RIA4 - Regulatory framework
This priority refers to the need for deeper knowledge on the existing barriers to the interoperability of systems across healthcare systems, as well as across health domains and countries (e.g. existing national infrastructures may not be yet prepared to respond to interoperability requirements). Standardisation plays an emerging role on enabling interoperability, especially regarding cross-European interoperable frameworks. Therefore, focus should be placed on the identification of data transmission details and on the technical requirements needed, so proper (and hopefully common) standards can be defined and implemented.

P6. Market access and business models

• P6-RIA1 - Enhance knowledge about the heterogeneity of the market/consumers
• P6-RIA2 - Identification of key partners for deployment
• P6-RIA3 - Reimbursement policies regarding health services
• P6-RIA4 - Impact assessment of the adoption of new solutions
• P6-RIA5 - IPR support mechanisms for SMEs
• P6-RIA6 – Feasibility studies on outcome-based models in Europe
Maybe we should also include some information about sustainability of current solutions in this area in order to detect successes and errors with the aim of creating new evidences on the return on investment (as mentioned in the Domain Area 5 of this AG) (Paloma Jimeno - Hi-Iberia Ingeniería y Proyectos)
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Paloma Jimeno
Paloma Jimeno
- 14 Sep 2016 12:47
This priority is linked to the need for new business models that can support the market uptake of the new solutions in the AHA market. These models have to be based on a thorough understanding of the different markets and consumers – the EU market is strongly fragmented -, so the constraints and challenges of introducing a new solution can be overcome. A wider knowledge of key players in the AHA arena could also have a relevant impact in this area. Furthermore, issues regarding Intellectual Property Rights (IPRs) need to be investigated so that the owners of the solutions are protected in this very competitive market. It will be important to study the feasibility of the existing outcome-based models and possible alternatives to ensure a proper European care and health system.

P7. Inclusion and active participation of older people in society

• P7-RIA1 - Social participation strategies
Here is place for a multidisciplinary social innovation initiative, particularly mapping and identifying different useful tasks and services, which very well could be covered by different age groups with varying background and qualifications.
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Lars Karlsson
Lars Karlsson
- 14 Sep 2016 17:23
A well tried out methodology is here EASW (European Awareness Scenario Workshop) Additional advantage is that all over Europe there are trained monitors to carry out such workshops. Many of them belonging to the age group 60 plus .
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Lars Karlsson
Lars Karlsson
- 14 Sep 2016 20:49
• P7-RIA2 - Impact assessment of existing models (on social and health conditions
• P7-RIA3 - Identification of good practices at international level
As it was shown within the FP5 Innovation programme, the creation of one or more accompanying measures to stimulate an all European networking around good practices,can be a worthwhile investment.
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Lars Karlsson
Lars Karlsson
- 14 Sep 2016 17:37
• P7-RIA4 - Multidisciplinary interventions (health, housing, social, urban planning…)
indeed a high priority topic since there are so less interventions focusing on holisitic aspects around europe
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Wolfgang Gunzer
Wolfgang Gunzer
- 21 Sep 2016 18:44
• P7-RIA5 - Foresight studies for the European age-friendly context
This priority focuses on the need for the ageing population to remain active in society and to prevent the exclusion of older people. This calls for age-friendly environments and communities where older people can remain active and engaged in society. Considering the specific qualities of an ageing population, R&I initiatives should try to contribute to the definition of inclusive and multidisciplinary intervention strategies such as adjusting urban and rural architecture fostering new models for participation in the labour market, etc.
This is evidently a very important issue and I'm glad it's addressed. Maybe it could be a little more detailed and I dare to say, more ambicious. We may identify and promote good practices but what we need now, in fact, is not only a UE comitment but also a national commitment for all UE members that these will be priorities - in our national funding programmes there are no multidisciplinary interventions - and actually almost no social interventions - and we need here an actual call to action (not only declations of "good" intentions).
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Carina Dantas
Carina Dantas
- 19 Sep 2016 16:55

P8. Funding and financing models

• P8-RIA1 - Benchmark studies on financing models
• P8-RIA2 - Interoperability of national research programmes/funding mechanism
• P8-RIA3 - Alternative funding mechanisms (e.g. funding schemes for industrialisation phases)
• P8-RIA4 - Impact assessment of existing models
• P8-RIA5 - Methodologies to encourage the participation of the private sector in AHA
very important indeed
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Carina Dantas
Carina Dantas
- 19 Sep 2016 16:56
There is a need to find new ways and financing mechanisms to support the development of innovative technologies and solutions for AHA, which can include private financing schemes, crowdfunding models, etc. It will be important to understand how the funding models can be extended to also cover the early stage of the commercialisation of technologies, and not only the Research and Innovation phases. This might be supported by impact assessment studies on the added-value of the current models. The importance of the private sector in the future of AHA was highlighted on a number of occasions during the discussions, as can be seen in Priority P2, when SAB members emphasised the importance of private sector skills. Also, SAB members stressed the importance of the integration of public and private funding and the threat of competing markets in China and the US. The role of the government in integrating the private sector in AHA is paramount to making it a success in the future. The right conditions within the industry need to be created, and there should be a focus on SMEs (P8-RIA5). Exploring the P8-RIA3, SAB members defended that the possible economic incentives of sharing medical data (e.g. Projects such as VISC+ in Cataluña, Spain) should be investigated along with the development of a network made up of public and private investors. Regarding P8-RIA4 they stressed that a metrics framework is needed to measure the quality of life implications as a tool to stimulate investment. These are metrics for companies and this can stimulate the systemic innovation. A shift from SMART targets to HARD targets is also needed. There are many existing technologies and solutions, let’s give these solutions some numbers (impacts).

P9. Ethics and data privacy

• P9-RIA1 - New forms of data access and privacy
• P9-RIA2 - Responsible data management and security
• P9-RIA3 - Big Data
this correlates with the P9-RIA2, because I think that it will be not an issue to collect huge amounts of data, but the important issue along big data will be how the data will be handled, managed an securely stored - and who will get access?
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Wolfgang Gunzer
Wolfgang Gunzer
- 21 Sep 2016 18:23
• P9-RIA4 - Identification of good practices at international level
Instead of this title, i think it would be more adequate to have: IDENTIFICATION AND CREATION OF GUIDELINES AND TOOLS This obviously implies the collection of international good practices but goes beyond - just collecting practices doesn't seem to be enough considering the fast development of technologies - we should have a more serious and effective proposal, that would produce outcomes to be used in the future.
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Carina Dantas
Carina Dantas
- 19 Sep 2016 13:03
I think it would be useful also to create lists, updated periodically, that identify providers that ensure data privacy. Some big names in cloud cannot comply with European regulations on data privacy. Maybe create a kind of badge that identify companies or tools that comply.
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AnnaZac
AnnaZac
- 27 Sep 2016 18:06
• P9-RIA5 - Professional ethics
This priority is connected to the need to ensure the adoption and implementation of ethical patterns in R&I initiatives for the progress of modern science. Particular attention has to be given to strategies that can ensure data privacy and protection, looking for measures that can tackle the fragile nature of existing digital security systems. Furthermore, data management is increasingly more important and therefore there is a need for new methods that can support the analytical management and ethical use of the results.
I would adapt the text saying "This priority is connected to the need to ensure the adoption and implementation of ethical patterns, GUIDELINES AND TOOLS in RRI..." because I believe we already have the expertise to go beyond general patterns and can propose some specific methodologies on these issues - Cáritas Coimbra and other partners are publishing an article this year proposing a Verification Methodology on Ethical Compliance of PCR that I expect can go on this pathway.
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Carina Dantas
Carina Dantas
- 19 Sep 2016 17:10
Since there is a new EU regulation on data privacy, i think this paragraph should refer to it. When it says strategies that can ensure data privacy and protection, we can add that they have to comply with the new EU regulations. Anna Zacchi
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AnnaZac
AnnaZac
- 27 Sep 2016 18:01

P10. Education and training on AHA

• P10-RIA1 – Re-thinking the education and training of AHA professionals in new care and health models
Who is considered to be a 'AHA professional'?
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Bart Geurden
Bart Geurden
- 25 Jul 2016 19:27
Dear Bart. Thank you for your question. “AHA professional” are the people involved in the AHA health care system. Inside this huge group of people we have different types of AHA professionals with particular skills, responsibilities and study levels, e.g. doctors, nurses, formal care providers, researchers, hospital staff. (Amilcar – PROEIPAHA Team)
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Amilcar Baptista
Amilcar Baptista
- 30 Aug 2016 11:53
• P10-RIA2 - Education and training models on AHA for decision-makers
• P10-RIA3 – Education and training models on AHA for the general public
The positive relationship between education and health is widely acknowledged. It becomes imperative to educate people to deal and manage health issues, seeking to achieve a good understanding of a life course perspective on ageing. New education and training models should allow more effective intergenerational links and more self-responsible role in health preservation. Also, informed decision-makers can contribute to the development of AHA policies and the swift implementation of measures to improve the quality of life of the population and the quality of the care services. Finally, AHA professionals need to be trained and equipped with the skills required to respond to the care models (e.g. home-centric approaches) and technologies.
very, very important
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Carina Dantas
Carina Dantas
- 19 Sep 2016 17:10
I agree, that this topic is very very important, but be aware that education programs should be tailored depending on the target group (AHA professionals, general public an ddecision makers) and that education and training might be performed by an interdisciplinary team to meet the goals of a holistic approach to AHA
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Wolfgang Gunzer
Wolfgang Gunzer
- 21 Sep 2016 18:17